January 28, 2016…a day that would change our lives forever. That was the day we received the diagnosis for Mason that would cause so much grief, pain, brokenness, uncertainty, but also would bring about a fight in this mama that I didn’t even know existed. A fight to be knowledgeable about this genetic disease, a fight to make sure my son will receive the best care possible, and a fight to become his advocate. It also reminded me to fully rely on God, because this is not a ...battle we can face without Him.
Mason has been diagnosed with a very rare genetic disease called Fanconi Anemia (FA). By definition FA is a condition that affects many parts of the body. FA is a rare inherited anemia that over time can lead to bone marrow failure or aplastic anemia. Approximately 31 babies are born with FA each year. The progression of the disease varies in patients and requires regular, life-long monitoring. There are therapies available to treat FA; bone marrow transplantation (BMT) is essential as FA become severe and can be a cure for blood problems associated with FA. Even after successful BMT, patients with FA are still at increased risk of developing cancers.
So what does this mean for us…it means that we are asking for prayers and support. We serve an almighty God, Jehovah Rapha – the Lord that heals. I was reminded by a family member that God loves my Mason more than I ever could! He has gone ahead of us and prepared the way, the path that we need to walk. We are going to walk this journey with faith and hope…and believe that our God is bigger than Fanconi Anemia and that He and Mason are strong!
**God’s will in not the path we walk, but rather how we walk the path**
Note from Pastor Jim Asberry of Exalted Ministries:
If you would like to make a donation to help cover the extensive costs that Ashleigh is incurring then please go to our 'Home Page' and click on the donate button. Please mark your payment for, "Mason Moses."
Thank you in advance for praying about helping this little boy!